Reflux occurs when the oesophagus is underdeveloped and
allows stomach contents to flow back up into the mouth and throat. There are
two types, Reflux and Silent Reflux. Reflux tends to manifest as significant
vomiting whereas silent reflux tends to be where the stomach contents flow up to
the mouth and irritate the area.
Iris was a very noisy sleeper. She constantly grunted and
wheezed. Being first time parents we had no idea whether this was normal and
assumed it was. Over the first few weeks of Iris’ life we noticed her pulling
her legs up, crying and seeming irritable. She sneezed a lot, choked on nothing and pushed her tongue out in a way that made it seem like it was too big for her mouth. We assumed it was wind and embarked
on a journey of Dentinox, Infacol, Gripe Water etc. Everyone had some advice to
offer and when I questioned whether it was actually wind I got a patronizing
nod of the head that said ‘Oh, poor first timer!’ (First parenting lesson
learned, you know your child. Listen to your instinct).
Having exhausted all the wind relief options I started to
research online and I found an abundance of information that matched up with
the symptoms Iris was having. There was no question in my mind that she was
suffering from silent reflux. We switched her onto a milk that was supposed to
help ease her symptoms but that replaced one problem with another. She suffered
horrendous constipation on the new milk which caused her more pain and
suffering so we switched back to her previous milk and were back to square one
so we headed to the gp surgery for help but all we got was that same old
patronizing head tilt and a diagnosis of colic. I felt embarrassed but I knew
my daughter and something wasn’t right.
I returned to the internet to find out what treatment others
were using and found that people were suggesting Carobel to thicken the milk. I
was too embarrassed to return to the doctors so I found a pharmacy that I could
order from and began using a small amount in Iris’ milk and noticed results
quite rapidly. I mentioned to my health visitor that we’d had a problem that
had been dismissed by a gp but we’d solved it ourselves and she was less than
impressed. She ordered that I stop the carobel immediately and take Iris back
to the gp. She put the fear of god into me and convinced me that in my efforts
to help my child I had inadvertently damaged her.
Thankfully we got a gp that listened and prescribed Gaviscon
Infant in every bottle. This essentially did what the Carobel did and thickened
the milk enough to prevent it from being regurgitated back into Iris’s throat
and causing her discomfort. All this had happened by the time she was 8 weeks
old. By the time she was 12 weeks old we’d been referred to a paediatrician as Iris
had developed agonising stomach pains. She would scream in a way that was
unlike any other cry we’d heard. It was heart breaking. Thankfully the paediatrician
was very aware of reflux and agree that the symptoms we’d described were
synonymous with those of silent reflux. He prescribed ranitidine to use alongside
the Gaviscon and gave us an open appointment for the next 6 months should we
need it. He also advised that we wean Iris from 4 months old.
Iris coped well with weaning, she really enjoyed her food and by around 18 months old she'd given up milk altogether. She still doesn't drink milk now but will thankfully eat yogurt and cheese so I'm not too concerned about her dairy intake. Her reflux persisted well past 18 months though. Every time we tried to wean her off the medications the pain would return. Even with the medication she would have bouts of pain. We found that certain foods could trigger certain effects. We discovered that if Iris had beetroot she would be awake in pain throughout the night which was such a shame as she really, really loves beetroot.
It's heart breaking to see your child in so much pain. Iris would literally try and smile at you through it. I have a video on my phone that I took to show the GP just how severe the pain was and although I've kept the video I can't bare to watch it. It took until Iris was over 2 years old to finally be rid of the medication and start to regulate her acid levels by herself.
Has your child suffered reflux? What were your experiences of diagnosis and treatment?
Thanks For Reading,
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Both my boys had silent reflux - Toby was 6 weeks old before we got a diagnosis and medication, and he was on Ranitidine until he was two and a half. Gabe was the same and he was on Gaviscon and Ranitidine by the time he was 10 days old. At 5 months we added omeprazole and he was on medication until he was almost two and a half as well. It's horrible but it can be well controlled with meds, and at 5 and 3 both my boys are absolutely fine with no lasting effects from their reflux. I hope Iris is doing better now.
ReplyDeleteThank you so much for your comment- it's exactly what I needed to read. I've been worrying because Iris has been on the meds for so long and everything I read said she should be better by 1. We've just tried coming off her meds and it's been a hellish week. We've started the meds back up and she's much better already x
DeleteIt such an awful condition, good your making awareness of it. X #mischiefandmemories
ReplyDeleteI had one with terrible reflux - would scream but not vomit and one with silent reflux - no distress but projectile vomits soooooo weird. #MischiefandMemories
ReplyDelete